Investigation of time and effort required for care activities among parents of children with cancer in pediatric educational treatment center
Journal Title: International Journal of Medical Research & Health Sciences (IJMRHS) - Year 2016, Vol 5, Issue 9
Abstract
Caring for children with chronic diseases, such as cancer, can impose lots of responsibilities on parents. The present study aimed to investigate time and effort required for care activities among parents of children with cancer in pediatric educational treatment center, Tabriz, Iran. In this descriptive comparative study, parents of 150 children with cancer who were under treatment in pediatric educational treatment center, Tabriz were selected through convenience sampling. Care of My Child with Cancer questionnaire was used to measure the time and effort spent on taking care of children. The data were analyzed using descriptive (frequency, percentage, mean, and standard deviation) and inferential (Friedman test) statistics. The most difficult and time-consuming tasks were physical care activities and usual care for the ill child and other children for the mothers, but emotional factors, information, communication needs, and maintaining family performance while facing disease and treatment for the fathers. The study findings emphasized the effect of childhood cancer on families. While taking care of patients physically, mothers can be provided with information about the disease, treatment, and child care so as to reduce a part of their care burden. Besides, supportive interventions can be used to decrease the fathers’ emotional care burden.
Authors and Affiliations
Sona Pashaee| Department of Operation and Anesthesiology, Faculty of ParaMedical, Urmia University of Medical Sciences, Urmia, Iran, Arash Khalili| Instructor, department of pediatric nursing, School of Nursing and Midwifery, Hamadan University of Medical Sciences, Hamadan, Iran, Hengameh Shirvani| MSc of Nursing, Tarbiat Modares University, Tehran, Iran, Leila Valizadeh| Department of Pediatric Nursing, Faculty of Nursing and Midwifery, Tabriz University of Medical Sciences, Tabriz, Iran, Fatemeh Joonbakhsh| Instructor, department of pediatric nursing, School of Nursing and Midwifery, Hamadan University of Medical Sciences, Hamadan, Iran Corresponding Email: Joonbakhsh_msc90@yahoo.com
Keywords
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