Problemy opiekuńcze związane z chorobą Huntingtona
Journal Title: Innowacje w Pielęgniarstwie i Naukach o Zdrowiu - Year 2016, Vol 0, Issue 2
Abstract
Huntington disease is a chronic neurodegenerative disease and autosomal dominant innate. The symptoms of this disease take the form of motor, cognitive, behavioral and emotional disorders. This diseases is particularly challenging to parents and caregivers, as well as doctors, psychologists, physiotherapists and social care employees. The purpose of this study is to present possible solutions to the problems related to Huntington disease, issues related to the care for the patient, assistance and support for patients and their relatives. It is necessary to educate people about Huntington disease and provide advice to caregivers and medical personnel with regard to dealing with its consequences. There is also a need to modify the existing system, improve the access to medical and social care, as well as create therapeutic teams and cooperate with them.
Authors and Affiliations
Lucyna Graf, Mariola Śleziona
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