Quality Of Life of Children with Sickle Cell Anemia
Journal Title: IOSR Journal of Nursing and health Science - Year 2018, Vol 7, Issue 2
Abstract
Background: Sickle Cell Anemia (SCA) Is One Of The Most Common Chronic Inherited Diseases Worldwide. It Results From Destruction Of An Abnormal Shaped Red Blood Cells That Known As Sickling .This Shape Disrupts The Normal Flow Of Rbcs Through The Blood Vessels Of The Body Which Deprive The Prevent Tissues From Receiving Adequate Oxygen. It Affects Many Aspects Of The QOL Including Physical, Psychological, Intellectual, And Social Aspects Of School-Age Children. A Competent And Qualified Nurse Has A Comprehensive Role In Assessing And Maintaining QOL Of Children With SCA. Objective: The Aim Of This Study Was To Assess The QOL Of Children With Sickle Cell Anemia Setting: This Study Was Conducted In Out And In Patient Departments At Al-Diwaniya Pediatrics Teaching Hospital-Iraq. Subjects: Convenience Sample Of 100 Children With Sickle Cell Anemia And Their Mothers Comprised The Study Subjects And Who Fulfill The Following Criteria, A- Age Ranges From 6 To12 Years. B- Free From Any Associated Diseases. Tools: Three Tools Were Used To Collect The Needed Data, Tool I Namely; Assessment Of Biosociodemographic And Medical Data Of Children With Sickle Cell Anemia, Tool II Namely; Assessment Of Quality Of Life Of Children With Sickle Cell Anemia Structured Interview Schedule, Tool III Namely; Visual Analogue Scales (VAS). Results: It Was Illustrated That There Were Positive Correlations And Significant Associations Between The Children's Reports And Their Level Of Quality Of Life In Most Categories; Dietary Habit, Rest And Sleep, Intellectual Aspect, Social State, Communication Skills And Dealing Approach Of Disease Symptoms And Treatment Process[(R= 0.931* , P= <0.001* ), (R=0.931* , P=<0.001* ), (R=0.495* , P=<0.001* ), (R= 0.263* ,P=0.008* ), (R= 0.972* , P=<0.001* ), (R=0.963* , P=<0.001* ), (R=0.295* , P=0.003* ) Respectively]. While, Correlation Were Not Found In Two Categories Only [Emotional Aspect And Pain Experienced] Where All Children Have Been Plotted In Poor Level (100%). Conclusion: Based On The Findings Of The Current Study, It Is Concluded That The SCA Is Greatly Affecting The Children's Quality Of Life. Whereas, It Was Found That More Than Two Third Of Studied Children Had Poor Quality Of Life And Neutral For Less Than Quarter Of Them. While, Small Percentage Of The Studied Children Had Good Quality Of Life.
Authors and Affiliations
Magda Aly Essawy, Awatif El Sharkawy, Zainab Al Shabbani, Afifa Reda Aziz
Keywords
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